The other night, I was over at Charmaine’s house. For those
who don’t know who Charmaine is, I highly recommend you read this post before
you continue. Don’t worry, I’ll wait for you until you get back...
Excellent, now that you’re all caught up we can continue.
The other night, I was over at Charmaine’s house. Her mum
and her dad were there too, oh and for anyone who is wondering the chihuahua
puppies have been born!
That is one of the puppies in my hand. For a frame of reference, I can pick up the mama dog easily with one hand.
Sam, Charmaine’s oldest sister and Maria, one of the “acquired
German daughters” (Charmaine’s live-in carer and OT for the year) had gone out
for the night. It was quite pleasant a night. The four of us were relaxing with the
television on. Dad was very tired after a long day at work, Mama was working on
the computer, and my mind was elsewhere thinking about my German exam at university
the next day while mindlessly stroking one of the dogs.
Then something very important happened.
I don’t even know how this happened. Charmaine and I weren't
actively practicing any sign language or doing speech therapy. She wanted something, I could tell that much. She was asking her dad for a mobile phone and I knew that's what she meant, but given what she was signing, she could've been asking to phone someone. So I turned to her and asked, using speech and sign: “Do
you want one?”
She picked up on my signs and started to respond with
signing for “I want”
But… suddenly we heard from her, clearly speaking: “I want”.
What was that?
Charmaine has a limited verbal vocabulary. She understands the
world around her very well, and also knows what she would like to say very well
but is afflicted with aphasia and apraxia of speech. Some of her words, with therapy and
practice include: Charmaine, Mama, Papa, Sam, Maria, Lala (what she called her
previous carer: to be fair, Claudia is a lot of phonemes), Tea, Fish,
Shower, Thank You, Sorry, Oops! and a few others including my name. She also can say “How are
you?” or if asked how she is she can respond with, “Fine, how are you?”. She also can say “I love
you”. Her two most recent words are: why and awesome.
But suddenly, while signing, the speaking just tumbled out “I
want”.
We were all silent and then Dad said: “Say it again,
Charmaine”. There was almost a sense of disbelief. You could feel the anticipation hanging in the atmosphere.
“I want”
Well there was no disbelief then.
The cheers were immense; the celebration was huge.
The cheers were immense; the celebration was huge.
“Charmaine say, “I want tea please” her Dad prompted
Without hesitation and clearly, Charmaine said it.
We filmed it. There was squealing. It feels like a piece of the puzzle has been put in and it has fit smoothly.
I messaged my own mother with the good news, my teacher from special school and my four closest friends. All of them appreciated this immense achievement and sent back messages ranging from "that's fantastic, Charmaine!" to "f***ing PHENOMENAL!!!!!"
We filmed it. There was squealing. It feels like a piece of the puzzle has been put in and it has fit smoothly.
I messaged my own mother with the good news, my teacher from special school and my four closest friends. All of them appreciated this immense achievement and sent back messages ranging from "that's fantastic, Charmaine!" to "f***ing PHENOMENAL!!!!!"
Later that night, Charmaine actually wanted tea and she simply said as she always does “tea”, but after a quick reminder to say a sentence it
happened again:
“I want tea, please”
It is a thrill to hear her speak.
It is a thrill to hear her speak.
And then she looked at me and said my name, and with a little bit of help said "want tea please", and I am never going to say no to tea!
That night, she could’ve had twenty cups of tea and nobody
would’ve objected.
We talk about inchstones and we talk about milestones. This
was a milestone.
Please, grab some tea and celebrate with Charmaine and me! Celebrate your own, your friend's or your children's milestones and inchstones with us!
I think this was an immense Discovery! We are hoping that the sign language and the intensive inTime therapy (THANKS, TRACY FROM LINKS TO LEARNING) is the key in unlocking Charmaine this year. Well done to both of you. Keep it up! ��
ReplyDeleteWhat a beautiful achievement! So happy for all of you! Congrats, Charmaine!
ReplyDelete